Saturday, June 30, 2012

Riding the Food Dye wave

I used to be the kind of mom that saw benefit in healthy eating--and now our sanity depends on it, while Tristan's SPD fights against it.  How so?  Well, he's very texture and temperature sensitive. If it's warm, it's "too hot!"  and anything leafy, soft, or mushy are "belch!" in his book.  He won't touch many kid favorite foods--hot dogs, chicken nuggets, most noodles (though spaghetti sometimes gets his approval)...and then those created in the last 40 years or so, he can't really have.  Let me explain.

We discovered back in October the connection between Yellow dye (both 5 & 6) and his hyperactive behaviors. This issue has been all over the news in the last two years.  For a few examples:
http://www.npr.org/2011/03/30/134962888/fda-probes-link-between-food-dyes-kids-behavior
http://miami.cbslocal.com/2012/03/28/can-food-dyes-cause-or-affect-adhd/
http://www.cnn.com/2011/HEALTH/03/30/fda.food.dye.health/index.html

I hadn't heard of it, though, until a church friend of ours who also works at the preschool Tristan attended this fall handed me a book by Feingold that she had read when her children had similar issues. We started taking all foods with dyes out of his diet and after a few days, he really was much calmer.  The only problem?  It's practically in everything geared to kids: store bought macaroni n' cheese, Kool-aid, jello, most candy and popsicles, many breakfast cereals (even ones you don't think of as multi-colored and dyed.  Yes, Cheerios is one on this list), juices, fruit snacks which had been Tristan's favorite snack, and the list goes on.

 (As a sort of side note: This is why I've been taking issue with the "organic" label lately--Annie's fruit snacks and others labeled organic have food dyes.  Read the label closely.  It even says "artificial colors and flavors."  How is something SO doctored considered 'organic'?)

It should be said, when some believe that those of us BEGGING for food dye regulation are not extremist in the least--many other countries DO regulate the use of food dyes and levels of dyes.  The US?  Not at all.  I don't think you necessarily need to ban them, but as we've seen such a huge increase in ADHD and hyperactivity in children (some sources  in the articles above mentioned 400% since food dyes have been added to foods), shouldn't we at least consider better regulation of what goes into the foods we eat and the safety of these additives?

In some ways, we're lucky.  Tristan ISN'T sensitive to Red 40, the most pervasive dye and the one many kids are sensitive to.  He IS very sensitive to yellow though (both the numbered ones and annatto--which we didn't know was a yellow dye until we did some searching after cheese crackers set him off).  How did we figure this out, and what does a food dye reaction look like around here?

Well, now that we keep him away from colors (thank you, capri sun and invisible Kool-aid for providing an occasional treat without the side effects!)  this is what can happen.   Before I start with what food dye "highs" (as I've taken to calling them) look like, you should know: he still naps and naps well most days for about 2-3 hours, and he also sleeps at night 7-6 or so.  He expends tons of energy so this seems normal.  He also expends tons of energy on food dye highs, but sleep patterns get crazy as you'll see.

Rob and I went to see "Brave" the other night.  I had been craving chocolate, so we got a bag of Reese's pieces and I didn't finish them.  They were 'hidden' in my purse.  On Thursday morning, Tristan snuck into my purse and found them.  After only a few seconds of quiet, we found him that morning eating them excitedly.  No, none of the brown ones--yellow and orange. Oh joy.

Thursday they worked on our roof, so I drove to Greenville with Tristan.  Of our 70 minute drive, he screamed "OUT! OUT!" for the last 20 minutes and couldn't stop wiggling.  We couldn't get him to eat much of anything, and he tried to drink his weight in milk and water.  He was irritable, didn't want to play with me or anyone else, and changed activities every 5 minutes.  Even one of his favorite videos at my parents house that's about 9 minutes long couldn't hold his attention the whole time.  Naptime was about an hour and involved us driving him around to sleep.  It took us 2 hours to get him to sleep that night. He got up on Friday morning about 5:30.

By 9 am, Tristan (and I) had played in the sprinkler, had a water pouring party on the kitchen floor, blown bubbles, ran around the backyard, had 3-4 cups of milk (again, almost no food though I did get him to eat some trader joe's fruit leather), played trains and danced to sesame street.  I was exhausted already (ugh pregnancy!) and he just kept going.  He was cranky and indecisive.  he would ask for something, and by the time I got it to him, he'd cry and tell me that he didn't want it and act like it was the worst thing I'd ever made him.  Naptime was a fight again, but I did get him to sleep without driving around.  It took over 30 minutes to get him to calm down enough to sleep and then he was up 45 minutes later, only slightly less cranky than before.  He wouldn't sit and eat with us for lunch or dinner. he only wanted to run around and play.  He'd barely make eye contact when I spoke to him.  He'd ask for hugs, but run away before I'd held him for 5 seconds.  Another hour at bedtime to try to get him down, and then we let him cry it out after that because both Rob and I were exhausted and he was still wanting to run around though at that point it was in circles while whining.

He was up by 5-something again this morning.  We tried to pull him into bed with us and rest, but he'd have none of it.  More milk, more running, more "no!" as I tried to keep him inside in this extreme heat, but he becomes belligerent during this period as well.

Food dye usually takes about 72 hours to wear off around here, or slightly less.  He is standing/sitting still for slightly longer periods of time this morning and showing some interest in food. He's also asking for hugs and making some eye contact. It's just so hard sometimes when your child can disappear behind this badly behaved facade for days, and you know the reason it happens but it's hard to stop sometimes.  He's too young to understand.  It also stinks because there's so much (texture and temperature wise) he refuses to eat and battles us over.  We're working with the OT on this, but...it just feels like a very long and frustrating road in the middle of a food dye high.

3 comments:

  1. Thanks for sharing Emily! Wonderful description of what you guys are experiencing.

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  2. When Allison was really young she would walk into walls because she didn't understand what low blood sugar felt like. I sure as Tristan grows up he'll begin to understand the association between certain foods and that crazed feeling.

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  3. Thanks for sharing your family's experience. I blog about our food dye sensitivities at www.DieFoodDye.com and collect parents' stories, and interview dye-sensitivie kids. I'm not surprised that he wouldn't eat food during his reaction, since he has SPD, and the dyes likely exacerbate that. I just wanted to note that if you see "artificial color" on a label, it means the color is from a non-petroleum natural source (berries, veg, etc.). The petroleum based dyes must be labeled as a color name followed by a number in the US. We have a bad reaction to annatto too, similar to Red 40, even though annatto is a natural colorant from a tree. So if an organic product says "artificial color" and it's yellow or orange, I avoid it. You can call the manufacturer to find out if it contains annatto, too. ~Rebecca at "Die, Food Dye!"

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